YOUR COMMENTS NEEDED FOR BULLETINS, NOMINATIONS AND OTHERS!
 

 

SURVEY FOR PARENTS/CAREGIVERS OF CHILDREN WITH SPECIAL NEEDS AND THOSE OF ANY AGE ON THE AUTISM SPECTRUM

  Dear Parent/Caregiver, 

Children with special health care needs and people of all ages with autism spectrum disorders are at-risk for severe outcomes during disasters. The Center for Public Health Readiness and Communication at the Drexel University is working with partners to study the disaster communication needs of these two understudied populations. The results of this study will be used to develop tools that can be used for communicating with at-risk communities during emergencies and disasters. 

We are asking families and caregivers of children and youth with special health care needs, health care providers, and other health professionals to complete an online survey providing information about themselves and their preparedness and communication needs. The survey should take 15 minutes to complete and you will find a link to the survey below. If you have received more than one request to complete this survey, we ask that you complete it only once. 

Participation in this research study is voluntary. You may refuse to take part in the research or exit the survey at any time without penalty. You are free to skip any particular question you do not wish to answer for any reason. 

Any personal information you provide will only be shown to people who have a need to review this information. No names or identifying information would be included in any publications or presentations based on these data, and your responses to this survey will remain private. 

If you have questions, concerns, or complaints, talk to the research team: 

Dr. Esther Chernak, MD, MPH Dr. Renee Turchi, MD, MPH 
Dornsife School of Public Health Dornsife School of Public Health 
Drexel University Drexel University 
3215 Market Street 3215 Market Street  
Philadelphia, PA 19104 Philadelphia, PA 19104 
Phone: 267-359-6038 Phone: 267-359-6051 
Email: dec48@drexel.edu
Email: rmt28@drexel.edu 

ELECTRONIC CONSENT: You may print a copy of this consent form for your records. Clicking on the survey link below indicates that: 

• You have read the above information 
• You voluntarily agree to participate 
• You are 18 years of age or older 
https://drexel.qualtrics.com/jfe/form/SV_bqny4byC1NorhiZ 
Thank you for your participation!