FASD- FETAL ALCOHOL SPECTRUM DISORDER
NEWSLETTERS and ARTICLES
NATIONAL ORGANIZATION ON FETAL ALCOHOL SYNDROME
Includes stillbirth connection, Canadian database, school support students, studies, webinar to watch, online PARENT SUPPORT GROUP and much more.
NEWSLETTER NOFAS May 7, 2018 edition
CENTER FOR FASD JUSTICE AND EQUALITY A Project of MOFAS Minnesota Organization on Fetal Alcohol Syndrome
Education, Health and Justice Equity
THE Arc NEWSLETTER
FETAL ALCOHOL DISORDERS MUCH MORE COMMON THAN PRIOR ESTIMATES ARTICLE
FASD IS HIGHER THAN AUTISM SPECTRUM DISORDERS
Medscape is the leading online global destination for physicians and healthcare professionals worldwide, offering the latest medical news and expert perspectives; essential point-of-care drug and disease information; and relevant professional education and CME.
In absolute terms, the authors diagnosed FASD in 222 children in the current study among 6054 who were screened for growth, development, or both. Yet only 2 of those participants had received a previous FASD diagnosis.
For the analysis, Dr. May and colleagues conducted a cross-sectional study of first-graders in public and private elementary schools in four communities across the United States, located in the Midwest, the Rocky Mountain area, the Southeast, and the Pacific Southwest. The children were recruited across two academic years between November 15, 2010, and July 12, 2016, yielding a total of 8 independent samples. The finding that only two of 222 children had already been diagnosed with FASD indicates that "a universal diagnostic approach needs to be accepted or developed," the editorialists add. "Ideally, novel and reliable biomarkers for detecting fetal alcohol effects will be identified, which could have significant implications for intervention and therapeutic services."
Findings In this cross-sectional study of 13 146 first-grade children in 4 regions of the United States surveyed between 2010 and 2016, the most conservative prevalence estimate for fetal alcohol spectrum disorders ranged from 11.3 to 50.0 per 1000 children. Using a weighted approach, the estimated prevalence was 31.1 to 98.5 per 1000 children.
In comparison, in 2012, the Centers for Disease Control and Prevention estimated the prevalence of autism spectrum disorders at 14.6 per 1000 children, or about 1.5%, the authors note.
Click here for the JAMA analysis article. Journal of American Medical Association
THE CANADA FASD RESEARCH NETWORK CanFASD
The Canada FASD Research Network (CanFASD) is launching the first national database, and first globally, on the disorder.
CANADIAN CLINIC OPENS TO HELP HOMELESS AND INMATES IDENTIFY IF FASD - Changing Lives
O'Donnell says one example is a man who was undiagnosed and addicted to drugs, homeless and getting into trouble with the law. But after his diagnosis, he was able to connect with services, stop self-medicating with drugs and start living independently.
COMPUTER AIDED RECOGNITION FOR FASD ARTICLE
This study concludes that, “We found there was an increased diagnostic accuracy for ARND via our computer-aided method. As this category has been historically difficult to diagnose, we believe our experiment demonstrates that facial dysmorphology novel analysis technology can potentially improve ARND diagnosis by introducing a standardized metric for recognizing FASD-associated facial anomalies. Earlier recognition of these patients will lead to earlier intervention with improved patient outcomes.”
entered Jan 2018
SPECIAL OLYMPICS AND FASD
“An Indiana Special Olympian qualified for the 2019 Boston Marathon, making him only the second in history to do so. Andrew Peterson, 24, was born with fetal alcohol syndrome and has permanent brain damage. To qualify for the Boston Marathon is an exceptional accomplishment. To be the fastest Special Olympics athlete to qualify is extraordinary. “I practice six days a week and that I can run with people that are better than me,” he explained what makes him so fast.”
- WISH TV 8
entered Jan 2018